Kidney disease of unknown cause
Kidney disease of an unknown cause means that your health care team does not know why you have kidney damage. Some people get kidney disease or have sudden kidney failure even though they do not have other health conditions or risk factors known to cause it. Doctors also call it kidney disease of an "unknown etiology".
Why should I find the cause of my kidney disease?
Finding the cause of your kidney disease can help you and your doctor:
- Make informed decisions about your treatment options
- Protect your overall health, such as to prevent other health problems
- Protect your loved ones, such as to make informed decisions about having biological children and take steps to prevent your biological children from getting kidney disease
- Find information and support about your kidney disease
Learn more about why it is important to find the cause of your kidney disease.
How can I work with my health care team to find the cause?
The first step to find the cause of your kidney disease is to work with your health care team. Learn how to:
- Share all your symptoms and health history with all members of your health care team
- Talk to your loved ones about your family health history
- Work with your doctor to find the cause of your kidney disease, including how to ask for a second opinion
- Navigate your health insurance when you are finding the cause
Which tests can I get to find the cause?
Your doctor will do tests to find the cause of your kidney disease. They may do some tests only one or two times, and may do other tests on a regular schedule. Learn more about:
- Tests to find the cause of kidney disease, such as urine and blood tests
- Genetic testing and counseling to look for changes in your DNA that may have caused your kidney disease
What else can I do to find the cause?
It can take time to find the cause of your kidney disease. Take an active role in your care and feel more confident and prepared:
- Do your own research to learn about rare diseases that cause kidney disease
- Understand your care team members and what they do
- Know what comes next if you are put on dialysis unexpectedly
What if I am caring for someone with kidney disease of an unknown cause?
It can be hard to care for a loved one with kidney disease of an unknown cause. You may feel frustrated, afraid or misunderstood while trying to find the cause. Follow these tips to stay organized, patient and confident during the process:
